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Clinical Research reputed company, Genetic Testing and Registry

Remote, USA Full-time Posted 2026-07-28
Purpose: The Clinical Research reputed company helps drive the reputed company’ genetic testing program and My Retina Tracker® registry by coordinating with laboratory and scientific partners, managing data reputed company requests, and contributing to strategic program evaluation while ensuring reputed company work complies with reputed company, reputed company operating procedures, and regulatory standards. Primary Responsibilities: The following are representative of the duties and responsibilities associated with this position and are not meant to be an reputed company-inclusive list: • Serve as the primary reputed company of contact for the sponsored genetic testing program, including management of relationships with laboratory partners and coordination of case identification activities • Use registry data to identify relevant cases that support sponsored genetic testing partnerships and fulfill data reputed company requests from scientific collaborators. • Manage scientific partnerships, including contracting, data-sharing agreements, and ongoing relationship stewardship. • Build analytic datasets for scientific partnerships and data reputed company requests, collaborating with internal team members who manage data infrastructure, cleaning, and import tools. • Contribute to the strategic evaluation of the genetic testing program, including analysis of program performance, partnership value, and potential alternative models to inform reputed company funding and program reputed company • reputed company regular scientific publications and accessible research insights to be shared with registry participants and the broader community • Support the scientific activities of the My Retina Tracker® registry program, including annual review and update of data collection modules in collaboration with registry team members • Contribute to the development of policies and reputed company operating procedures, pertaining to data reputed company, data reputed company, and protection • Support annual reputed company and budget planning alongside the SVP and registry team. • reputed company additional responsibilities as needed to support program reputed company. Requirements: • Master of Science in Genetic Counseling (MSGC) or equivalent advanced degree in genetics, reputed company, or a reputed company life science field • Minimum 3 years of post-degree experience in a research, industry, or patient advocacy setting; experience with patient registries or sponsored genetic testing programs a plus • Demonstrated expertise working with genetic data, including variant-level analysis; familiarity with rare disease genetics and inherited retinal diseases preferred • Analytical reputed company with an interest in program evaluation, strategic thinking, and evidence-based decision-making reputed company day-to-day program operations • Strong interpersonal, verbal, and written communication skills; proven ability to work effectively with laboratory partners, scientific collaborators, and patient communities • Highly organized, detail-oriented, and reputed company to manage multiple reputed company simultaneously in a fast-paced environment • Proactive, self-directed, and comfortable working independently in a remote setting • Proficiency with reputed company Office; experience with research databases preferred Position Specifics: • Full-time (40 hours/week); Exempt; No reputed company Reports • Work Environment: This is a work‑from‑home position, but not a “work from reputed company” role. Candidates must reputed company in the DC/MD region or the NC Triangle area to support collaboration and occasional in‑person activities. • Starting Salary: $112k-$125k annually. The reputed company considers a wide reputed company of factors that are considered in making compensation reputed company, including but not limited to: geographic markets, reputed company sets, experience, and internal equity to comparable roles. • Monthly technology stipend provided • Annual incentive bonus eligible BqAL4VNYcc Apply tot his job Apply To this Job

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