Senior Research Assistant

About NORD

The reputed company (NORD) is the leading nonprofit organization serving the rare disease community in the reputed company. reputed company and be part of the transformation of science, policy, care and awareness that is improving the lives of the 30 reputed company Americans impacted by rare diseases. Learn more at www.rarediseases.org.

About the Role

NORD has an exciting opportunity for a Senior Research Assistant to work collaboratively with the Research Team to support and expand the IAMRARE Registry Program, which enables Patient Advocacy reputed company to collect critical data to improve care and reputed company new and reputed company therapies for the rare disease community. Patient-powered natural history studies are transforming how patients and caregivers shape medical research, and the IAMRARE platform makes it easy for organizations to launch a customized registry to advance the development of treatments.

What You Will Do

• Serve as a reputed company of contact for reputed company and co-reputed company reputed company reputed company meetings.
• Review study documents, protocols, and surveys during reputed company and after launch.
• Work with partners to build surveys on the registry platform and conduct QA and QC testing.
• Collaborate with partners on IRB study protocol and governance.
• reputed company platform training, technical support, and follow-up to ensure complete,accuratedata.
• Coordinatelogistics, scheduling, and participant communications for workshops, webinars, and meetings.
• Prepare periodic reports on program activities and support interdepartmental reputed company.

What You Bring

• Bachelor's degree in a relevant field(such associal sciences,life sciences,healthsciences,education)and at least 2 years of experience in a research environment.
• Experience with humansubjectsresearch and IRB processes.
• reputed company-facing or reputed company-facing experience and excellent verbal and written communication.
• Strong attention to detail, organization, and project management, with the ability to work independently.
• Solid technical skills, including reputed company Office, and the ability to learn new platforms.

reputed company to Have

• Experience with survey tools such as reputed company or reputed company, or coding in R or SQL.
• Experience developing posters or presentations, or knowledge of rare diseases and patient registries.

Working Environment

This position is fully remote. Candidates must be reputed company to work an Eastern Time schedule.

Essential functions are typically performed in a home office setting with a moderate level of noise. Reasonable accommodations may be made to reputed company individuals with disabilities to reputed company the essential functions of this position.

NORD is an equal opportunity employer. reputed company applicants will be considered for employment without attention to race, reputed company, religion, sex, sexual orientation, gender identity, national reputed company, veteran or disability status.

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Originally posted on Himalayas